Monday, March 3, 2014

Update (again)

The above photo is the medications I take on a daily basis. I must say that it is annoying being sick all the time. I have been stuck in bed much of the time, unable to stay awake. Chemotherapy meds have caused mouth sores, nausea, and such severe fatigue that I can't even sit up at the computer. I hate this, but people die from this disease. It killed actor Harold Ramis of Ghostbusters recently. I need to keep fighting because of that fear of death. It is getting better now however.
I have been horribly behind on my school work, but I am catching up slowly. Two of my three professors are allowing me to submit my work I am behind on for full credit, and that is helping. I hope the third one will allow that as well, as this is extremely difficult to juggle to start out. I am pretty used to the chemo meds now, and I am feeling better despite everything. I have caught a cold however, and I have to watch that. A cold for me can kill me due to my immune system. Back to the doctor I go tomorrow!
A new update is my mobility issues have been attributed to another disease called lipoedema. It is abnormal fat cells, a disorder of the adipose tissues in the body. It leads to huge fat deposits on your legs, thighs, butt, and sometimes arms. Often mistaken for obesity, this fat is not responsive to anything, diet, fitness, even bariatric surgery. It is essentially forcing my body to live in a fat suit forever. It sucks major! There is no cure, but the compression wraps and surgery can help ease symptoms. We will see if I can gather the funds I need to get surgery. As for now that is my legs (above). Lipoedema can make you look fat. The worst part is it happens to abnormally thin to obese people. It is not a disease of obesity, but a disease of the adipose tissue.. I will post a few pictures about it below. Anyway I hope all is well. Much love!

More lipoedema photos:

Lipoedema Stages 1-3

Lipoedema Legs, Typical Manifestation

Buttocks and Leg Fat Deposits 


Lipoedmea Fat

Lipoedema STages 1-3

Arm fat in lipoedema



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